ALS 101 is an intensive interactive session designed by ALSTDF staff to help provide ALS patients and their families with:
Enhanced skills to partner with their physicians in making well-informed treatment decisions. A clear and basic understanding of the biology of ALS.
An understanding of the research being performed and the resources available at ALSTDF.
An opportunity to connect with other patients and families in the ALS community, as well as with the ALS-TDF staff members working every day to find a treatment for ALS.
The next ALS101 is scheduled for December 6th in Chicago. Please e-mail ALS101@als.net for details.
The Family & Friends Community at ALSTDF is led by the values we believe are central to our quest to find a cure for today's ALS patients. These values are:
Openness & Integrity
Challenge & Respect
Data & Intuition
Collaborate & Innovate
Courage & Love
Responsibility & Effectiveness
Family & Friends Community Staff:
Jennifer Oken, Family & Friends Community Manager. Jennifer joined the Foundation in July 2003. She has over eight years' experience in fundraising, event planning and health education at organizations such as Brigham and Women's Hospital, the Justice Resource Institute's Assisted Living Program, Save the Children and the Women and AIDS Support Network. Prior to her work in the health field, Jennifer made a living as a professional baker and cake decorator and, later, attended art school in Italy and Greece. Having lived as far abroad as Zimbabwe and Malawi, Jennifer has spent the last five years in Boston. She holds a B.A. from Vassar College and a Masters of Public Health from Boston University.
Molly Brady, Family and Friends Program Coordinator Moving from Michigan after graduate school, Molly worked as a social worker, providing services for homeless youth, before joining ALSTDF in September 2003. Molly has been involved in volunteer fundraising projects since 1990, and is a chairperson on the American Cancer Society's Committee for the Relay for Life in Newton. She has lived in Boston for two and a half years, and is an avid runner, volleyball player, and Red Sox fan. Molly holds a BA in Psychology from Kalamazoo College and a Masters in Social Work from the University of Michigan. – less–ZoomInfo