The organization had positive and negative aspects. I am glad to have had opportunities to serve them.
Pros: being part of active advocacy
Cons: mis-communication, lack of appropriate communication during crisis.
Educational HOPE mentor programs.
research for information upon request. Support for families in an on-line community. We grew to a good-sized state support group which I lead. We gathered occasionally.
I learned how to advocate on a state and national level. I saw a bill become a law within our state after 5 years of hard work. I learned how to become – more... a better communicator with electronic methods.
Management was not as efficient as it could have been.
My co-workers were pleasant for the most part. There were times where the communication became challenging.
The hardest part of the job was when an administrator did not state her desires directly to me. She had expectations but did not state them to me. She did not like that I also volunteered for the national epilepsy foundation on a few projects. I did not know that this bothered her prior to my involvement. I did not have a exclusive contract with her foundation. I thought that the more knowledge of the disorder the better for her work. I was mistaken.
The most enjoyable part of the job was the opportunities to take part in advocacy on state and national levels. – less