The NephCure Foundation is the only organization solely committed to seeking a cause and cure for two potentially devastating kidney conditions, Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS). NephCure is made up of patients, their families and friends, researchers, physicians and other healthcare professionals joining forces to create awareness and generate funding for research.
We aim to help science unlock the biological mechanisms that cause these serious conditions and ultimately find a way to cure and prevent them. Until that day, we will:
Provide information, education, support and advocacy for patients and their families
Raise public awareness of Nephrotic Syndrome and FSGS
Work to attract researchers to this field
Conduct public and private fund-raising that will produce substantial research grants
Work with the National Institutes of Health and other agencies to increase funding for research
The NephCure Foundation was established as a non-profit organization in 1999 and is recognized as such by the Internal Revenue Service. Since then, we have testified before Congress four times, adding impetus to the federal government's plans for the most comprehensive clinical trial program to date into FSGS-a $12 million, five-year project studying the effect of various treatments on 500 FSGS patients.
Our groundbreaking partnership with the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) means the federal government will match, dollar-for-dollar, the money raised by NephCure. We have guaranteed $300,000 to this program over three years, making available a combined total of $600,000 to researchers who will study samples gathered from hundreds of FSGS patients in the upcoming clinical trial.
In other activities, NephCure is conducting several Patient Education Seminars each year and has begun establishing local NephCure chapters across North America. Programs such as these provide patients and families with opportunities to learn of the most recent treatment and research news and take an active role in raising funds and awareness.
The NephCure Foundation is a U.S. tax exempt 501 (c)(3) public charity. Click here to download the IRS certificate. – less – More from ZoomInfo »