Special Events Coordinator/Director of Development
Director of Special Events (Former Employee) – Richmond, VA – August 1, 2018
The mission and the patients and their families are wonderful. The management is not. The organization needs to replace Senior Management with new, fresh people and ideas. The mission is to find a cure, to raise funds to support research to find a cure and so on. The fundraising was extremely difficult and if goals weren't met, additional fundraising was added on top of already lofty goals. They claim that $.80 cents of every dollar goes towards research. That is impressive yet sometimes "one has to spend money to make money".
Volunteer (Current Employee) – Santa Ana, CA – May 1, 2018
Since I was a volunteer I did not truly get the full experience of the workplace but greatly enjoyed my time working. I was able to attend multiple events such as Hike the Halo and Pipeline to a cure and enjoyed volunteering at both events.
Analyst (Current Employee) – Bethesda, MD – February 26, 2018
A toxic work environment that discriminates against young people especially young females. The upper management are incredibly incompetent. They have a retention problem for a reason. The place is just total chaos. The only good thing is the cause.
Senior Development Director (Former Employee) – Minneapolis, MN – February 8, 2018
Overall it's a great organization with a great cause. The culture and quality of leadership varies from chapter to chapter. It is a good idea to really dive deep on what the ED's style is and the size of the office.
wasn't a bad temp gig, just tended to interfere with my full time job, limiting my travel abilities for the full time job. the basically threw me under the buss on the paperwork one night when that sites book keeper couldn't make it in,
Administrative/Logistics/Operations Specialist (Former Employee) – Broomall, PA – October 12, 2017
walking and working with volunteers was inspiring. Office comraderie helped with challenging days. learning the company software and regulations on our own time. Team effort to keep up with changes in federal regulations.
Changes in Federal laws was too often. Hard to keep up.
Logistics Specialist (Former Employee) – Atlanta, GA – August 18, 2017
Very cut throat environment that demands you live a certain lifestyle if you expect to stay and move up. Despite the goal of the foundation being to raise money, they are far more focused on appearance.
Assistant Director of Campaigns (Former Employee) – Hunt Valley, MD – August 9, 2017
I was hired to get business to host small fund raising events, walk-a-thons, swim-a-tons, bike-a-thons, etc. I was in charge of obtaining and managing volunteers necessary to execute said events. I helped obtain and physically retrieve auction items that were donated by local sports teammates and nationwide recording stars. I loved the job, but being a single mom, I needed to make more money, even thought they were accepting of me bringing my children to work. My children benefited from the experience and even helped out around the office and with some major events. We still support the Cystic Fibrosis Foundation whenever we can.
Great work culture but needs to increase the pay scale for staff members.
Management (Current Employee) – Bethesda, MD – May 29, 2017
This is a great place to work and I would definitely recommend someone applying for a position here. I have never experienced a bad day at work...sometimes it can be demanding but that is normal productive day. I would definitely recommend negotiating your best salary in the beginning because raises are not that great unfortunately.
Flexible work hours, great work culture and good benefits
Development Director (Current Employee) – Bethesda, MD – April 14, 2017
Chapter employees endure a fairly grueling events schedule, with little balance or leeway. Long hours are expected, and weekend time is not compensated. Heavily micromanaged and lack of clear communication makes it difficult to anticipate supervisor's expectations. Clear system for promotion or advancement, or salary increase.
Very worthwhile mission and cause, some perks and flexibility
Long hours, no advancement structure, lack of work/life balance